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Advance Healthcare Directive Clauses And Sections In Britain

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Explore key clauses and sections used in advance healthcare directives and why they matter. This structured dataset helps you understand common wording, compare provisions, and make more informed planning decisions. For related resources, visit AI Generated British Advance Decision.
Clause name
Purpose
Relevant to life sustaining treatment refusal
Drafting note
Personal details
Full Name And Identity Details
Identifies the person making the Advance Decision.
true
Include full name, date of birth, NHS number if known, and current address.
Current Address And Contact Details
Helps clinicians match the document to the correct patient.
true
Add residential address, telephone number, email, and any previous names.
Date Of Birth
Provides a key identifier for healthcare records.
true
Use day, month, and year to reduce risk of misidentification.
NHS Number
Links the Advance Decision to NHS clinical records.
false
Include the NHS number if known
do not delay signing solely to find it.
Statement of understanding
England And Wales Jurisdiction Statement
States the document is intended as an Advance Decision under the Mental Capacity Act 2005.
true
Use where the maker is in England or Wales or wants the document governed by that framework.
Capacity At Time Of Making
Records that the maker has capacity when making the refusal.
true
State that the maker understands the nature and consequences of the decision.
Understanding Of Consequences
Shows the maker understands the effect of refusing treatment.
true
Mention discussion with a clinician if one occurred and note likely outcomes.
Free And Voluntary Decision
Records that the decision is made without pressure or coercion.
true
State that the maker has not been pressured by family, carers, or professionals.
Treatment refusal
Circumstances In Which Refusal Applies
Defines when the specified refusal is to operate.
true
Describe clinical situations clearly, such as permanent unconsciousness or advanced dementia.
Specific Treatment Refused
Identifies the treatment the maker refuses in advance.
true
Name each treatment rather than using only broad wording where possible.
Treatment refusal, Life-sustaining treatment wording
Refusal Of Cardiopulmonary Resuscitation
Refuses attempted CPR in specified circumstances.
true
State whether CPR is refused only in defined conditions or in all future circumstances.
Refusal Of Artificial Ventilation
Refuses mechanical ventilation or breathing support in specified circumstances.
true
Specify invasive ventilation, non-invasive ventilation, or both, if intended.
Refusal Of Artificial Nutrition And Hydration
Refuses clinically assisted feeding or fluids in specified circumstances.
true
Use precise wording for tube feeding, intravenous fluids, or clinically assisted nutrition and hydration.
Refusal Of Dialysis
Refuses kidney dialysis in specified circumstances.
true
State whether refusal covers starting dialysis, continuing dialysis, or both.
Treatment refusal
Refusal Of Antibiotics For Life-Threatening Infection
Refuses antibiotics where infection occurs in specified end-of-life conditions.
true
Clarify whether comfort-focused antibiotics remain acceptable.
Refusal Of Blood Transfusion
Refuses transfusion of blood or blood products.
true
List any acceptable blood fractions or alternatives if relevant.
Refusal Of Surgery Or Invasive Procedures
Refuses specified operations or invasive interventions.
false
Identify procedures and circumstances
avoid refusing routine comfort measures unintentionally.
Refusal Of Chemotherapy Or Cancer Treatment
Refuses specified cancer treatments in defined circumstances.
false
State whether the refusal covers curative, palliative, or experimental treatment.
Refusal Of Intensive Care Admission
Refuses ICU-level treatment in stated circumstances.
true
Specify which ICU treatments are refused rather than refusing location alone.
Palliative Care Not Refused
Confirms comfort care, pain relief, and symptom control are still wanted.
false
State that refusal of treatment does not refuse pain relief, nursing care, or hygiene.
Basic Care Not Refused
Clarifies that ordinary care and comfort measures remain accepted.
false
Mention warmth, hygiene, mouth care, food and drink by mouth if safe, and pain relief.
Emergency Treatment Pending Assessment
Allows urgent steps while validity and applicability are checked.
false
Acknowledge that clinicians may give emergency treatment while locating or verifying the document.
Pregnancy Circumstances
States whether refusals apply if the maker is pregnant.
true
Include clear instructions if pregnancy would change the maker's decision.
Statement of understanding
Refusal Takes Effect When Capacity Is Lost
Confirms the refusal is intended to operate only if capacity is later absent.
true
State that the maker can decide for themselves while they have capacity.
Life-sustaining treatment wording
Applies Even If Life Is At Risk
Includes the required statement for refusing life-sustaining treatment.
true
Use clear words that the refusal applies even if life is at risk.
Life-sustaining treatment wording, Witnessing and signature
Written Form For Life-Sustaining Refusal
Records that the life-sustaining treatment refusal is in writing.
true
Ensure the refusal is contained in the signed written document, not only discussed orally.
Witnessing and signature
Maker Signature
Shows the maker has signed the Advance Decision.
true
Include signature, printed name, date, and place of signing.
Signature By Another Person At Direction
Allows signing by another person in the maker's presence and at their direction.
true
Record why another person signed and that the maker directed the signature.
Witness Signature
Evidences witnessing of the maker's signature or directed signature.
true
Add witness name, address, signature, date, and statement of witnessing.
Independent Witness Details
Supports reliability of the signature and reduces later disputes.
true
Prefer an adult independent witness who is not pressuring or benefiting from the decision.
Date Of Signing
Shows when the Advance Decision was made or confirmed.
true
Use a single clear date and avoid undated amendments.
Statement of understanding
Clinical Discussion Record
Records medical advice considered when making the document.
false
Name the GP or consultant, date of discussion, and key points understood.
Health And Welfare LPA Compatibility
Clarifies the relationship with any health and welfare attorney authority.
true
State whether any LPA exists and whether it was made before or after this document.
No Later Inconsistent Decision
Helps show the Advance Decision has not been withdrawn or overridden.
true
Confirm there is no later statement, conduct, or LPA authority inconsistent with the refusal.
Review and updates
Right To Withdraw While Capacitous
States the maker may withdraw the Advance Decision while they have capacity.
false
Explain that withdrawal can be made later and should be communicated clearly.
Regular Review Schedule
Shows the document remains current and considered.
false
Include review intervals, such as annually or after major health changes.
Review and updates, Witnessing and signature
Review Confirmation Signature
Records that the maker has reviewed and confirmed the document.
false
Add review date, maker signature, and witness signature if practical.
Review and updates
Amendments And Replacement Versions
Prevents confusion between old and new versions.
false
Avoid handwritten changes
sign a replacement document and destroy superseded copies.
Review After Health Or Life Changes
Prompts review when circumstances may affect the maker's wishes.
false
List diagnosis, treatment change, hospitalisation, care move, relationship change, or new LPA.
Communication and copies
Copy To GP
Helps ensure the Advance Decision is noted in primary care records.
false
Name the GP practice and request that a copy is added to the medical record.
Copy To Hospital Or Specialist Team
Alerts treating specialists to treatment refusals relevant to future care.
false
List consultant, clinic, hospital, or community team receiving a copy.
Copy To Care Home Or Carers
Ensures day-to-day carers know the document exists.
false
Identify the care provider and where the copy should be stored.
Notification To Health And Welfare Attorneys
Informs attorneys of treatment refusals and document location.
false
List attorney names, contact details, and whether they hold a registered LPA.
Family And Emergency Contact Notification
Reduces delay and dispute by identifying people who know about the document.
false
Include names, relationships, phone numbers, and whether each person has a copy.
Location Of Original Document
Helps clinicians or relatives locate the signed original quickly.
false
State the storage place and who can access it in an emergency.
List Of Copy Holders
Shows who has received the Advance Decision.
false
Record names, roles, addresses or emails, and date sent.
Electronic Record And Digital Copy
Encourages accessible digital storage alongside paper copies.
false
Note if a scanned copy is held by GP, hospital, attorney, or secure cloud account.
Wallet Card Or Emergency Notice
Alerts emergency staff that an Advance Decision exists.
false
Include maker name, emergency contact, GP, and location of the signed document.
Ambulance And Emergency Services Information
Helps emergency responders identify refusals relevant to urgent treatment.
false
Ask the GP or care team about local electronic palliative care or urgent care records.
Communication and copies, Treatment refusal
Relationship With DNACPR Form
Clarifies whether a separate DNACPR record exists or is requested.
true
State that the Advance Decision is distinct from, but may support, CPR planning.
Statement of understanding
Values And Reasons Statement
Explains the values behind the treatment refusals.
false
Keep separate from binding refusals and avoid unclear conditions.
Advance Statement Is Non-Binding
Distinguishes preferences from legally binding treatment refusals.
false
Label wishes about place of care, visitors, or beliefs as preferences, not refusals.
No Request For Assisted Dying
Clarifies the document refuses treatment and does not request unlawful assisted dying.
false
State that the maker seeks lawful refusal of treatment, not active steps to cause death.
Mental Health Act Treatment Caveat
Notes limits where treatment is regulated by mental health legislation.
false
Include if the maker has relevant mental health history or wants to avoid overstatement.
No Demand For Specific Treatment
Confirms an Advance Decision refuses treatment and cannot require treatment.
false
Put treatment preferences in an advance statement or care plan instead.
Review and updates
Change In Circumstances Warning
Recognises that changed circumstances may affect applicability.
true
Review wording if treatments, diagnosis, prognosis, or personal wishes change.
Statement of understanding
If Validity Or Applicability Is Unclear
Acknowledges clinicians must consider validity and applicability before relying on refusal.
false
Name contacts who can confirm wishes, but do not give them power to alter the refusal.
Treatment refusal
Medical Conditions Covered
Links refusals to specified current or future medical conditions.
true
Use plain descriptions and clinical terms where known, such as MND, dementia, stroke, or cancer.
Treatment refusal, Life-sustaining treatment wording
Permanent Unconsciousness Or Coma Scenario
Applies refusals if recovery of consciousness is not expected.
true
Define who should assess prognosis, such as the responsible consultant and a second doctor.
Advanced Dementia Scenario
Applies refusals if dementia reaches a defined severe stage.
true
Describe functional triggers, such as inability to recognise family or swallow safely.
Terminal Illness Scenario
Applies refusals where illness is incurable and death is expected.
true
Define prognosis threshold if desired, such as days, weeks, or months.
Severe Stroke Or Brain Injury Scenario
Applies refusals after catastrophic neurological injury in defined circumstances.
true
Describe outcomes that would trigger refusal, such as permanent inability to communicate.
Treatment refusal
Severe Irreversible Suffering Scenario
Applies refusals where suffering is severe and cannot be acceptably relieved.
true
Define suffering carefully and include clinical assessment requirements where possible.
Statement of understanding
Religious Or Ethical Basis
Records beliefs relevant to the refusal, such as blood product decisions.
false
Keep belief statements concise and connect them to specific treatment refusals.
Statement of understanding, Witnessing and signature
Interpreter Or Communication Support Used
Shows communication support was provided when making the decision.
false
Record interpreter name, method used, and confirmation that the maker understood.
Statement of understanding
Capacity Assessment Attachment
Provides extra evidence of capacity where challenge is possible.
false
Consider a clinician note if the maker has cognitive impairment or complex refusals.
Binding Refusal Not Best Interests Preference
States that a valid and applicable refusal must be followed, not balanced as a preference.
true
Use for clarity where the maker wants binding refusal rather than general guidance.
Treatment refusal
Treatments Not Covered
Clarifies which treatments are not refused by the document.
false
List treatments the maker still accepts to reduce unintended broad interpretation.
Communication and copies
Organ Donation Compatibility
Notes whether refusals should be read consistently with organ donation wishes.
false
State whether short-term procedures for organ donation are accepted or refused.
Person To Contact About Wishes
Identifies someone who can explain the maker's wishes and document history.
false
Make clear the contact explains wishes only and does not override a valid refusal.
Statement of understanding
Scotland And Northern Ireland Caution
Warns that legal rules differ outside England and Wales.
false
Use jurisdiction-specific advice if the maker lives, receives care, or travels elsewhere in the UK.

What Clauses Make An Advance Decision Valid In England And Wales?

An Advance Decision to refuse treatment should clearly identify the maker, specify the treatment refused, and state the circumstances in which the refusal applies. If it refuses life-sustaining treatment, it must be in writing, signed by the maker or by someone at the maker's direction, witnessed, and include an express statement that the refusal is to apply even if life is at risk.

Which Clauses Are Most Important For Refusing Life-Sustaining Treatment?

  • Life-sustaining treatment wording is critical: the document should say the refusal applies even if life is at risk.
  • Specific treatment refusal clauses help avoid uncertainty by naming treatments such as CPR, ventilation, artificial nutrition and hydration, dialysis, antibiotics, or blood transfusion where relevant.
  • Witnessing and signature clauses are especially important because special formalities apply to life-sustaining treatment refusals.

How Should Copies And Communication Be Handled?

The document is more useful if it includes clauses for sharing copies with the GP, hospital team, care home, family members, attorneys under a health and welfare LPA, and emergency contacts. A clause stating where the original is kept can help clinicians find and rely on it quickly.

Why Should An Advance Decision Be Reviewed?

Regular review clauses help show that the decision still reflects the maker's wishes. A review is particularly useful after a new diagnosis, change in treatment options, hospital admission, care home move, marriage or civil partnership change, or creation of a health and welfare lasting power of attorney.

What Should Users Know About UK Differences?

The statutory Advance Decision rules in the Mental Capacity Act 2005 apply in England and Wales. Scotland and Northern Ireland use different legal frameworks and terminology, so a UK-facing document should make clear which jurisdiction it is intended for.

Advance Healthcare Directive Clauses and Sections
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FAQs

An advance healthcare directive is commonly known in England and Wales as an Advance Decision to Refuse Treatment, or ADRT. It is a legal document that lets an adult refuse specified medical treatment in advance, in case they later lack capacity to decide.
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References and Information Sources